The Things We Worry About Now Maya’s Journey — October 2026 The last time I wrote on here was 29th August 2026, in a blog called “It Had Never Reached Her Liver Before. At that point, we were trying to process the fact that Maya’s neuroblastoma had now reached her liver. Since then, so much has happened that it is difficult to know where to begin. And honestly, I don’t think any parent should ever have to write an update like this about their child. We had to stop neuro-rehab

On Friday 22nd August, Maya had the whole-body MIBG scan. In medical language, the report was complicated. In simple terms, it told us something devastating: Maya’s neuroblastoma is active again and has progressed. The tumour we already knew about near the lower left side of her chest and ribs has grown significantly and become much more active. But it isn’t just there. The cancer has also shown itself in several of Maya’s bones — including her skull, shoulder, right upper ar