Friday 27th February – A Very Long Day! So Friday was one of THOSE days! 10:30 Paraceramol and Antihistamine 10:30-11:30 Physiotherapy (Tilt Table standing up) 11:30 Maya had her Ruxolitinib infusion, and honestly, it pretty much took up the whole day — about five hours or so in total, including flushing the line that kept occluding. The Team started carefully. She had paracetamol and an antihistamine first, just to reduce the chance of any reaction. Then the infusion started

🌼 Awareness & Gratitude 🌼 When I swapped with Terry on Friday night (31st October), I noticed Maya’s PICC line site looking red, sore and Maya was shivering (rigors). It had only been inserted a few days earlier (28th October) under general anaesthetic, so some discomfort was expected — but as a parent, you just know when something doesn’t look right. I raised my concern with the nurse looking after Maya, and I’m so grateful they took it seriously straight away. They checke