On Friday 22nd August, Maya had the whole-body MIBG scan. In medical language, the report was complicated. In simple terms, it told us something devastating: Maya’s neuroblastoma is active again and has progressed. The tumour we already knew about near the lower left side of her chest and ribs has grown significantly and become much more active. But it isn’t just there. The cancer has also shown itself in several of Maya’s bones — including her skull, shoulder, right upper ar

World Cancer Day: When “Rare” Becomes Your Whole World World Cancer Day is meant to raise awareness. To shine a light. To educate. But when your child has cancer, days like this don’t feel symbolic — they feel deeply personal. Neuroblastoma is often described as rare. Rare on paper. Rare in statistics. Rare in conversations that happen far away from hospital walls. But “rare” is only rare until it happens to you. And when it happens to you, it is no longer a percentage or a h