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When Your Child’s Life Hangs by a Thread
Gratitude: New Year’s Eve Reflections Lately, I’ve been thinking a lot about why gratitude has become something I hold onto so tightly. When Maya was diagnosed back in April 2017, she was just three years and nine months old. Stage IV neuroblastoma. The doctors told me she only had days — maybe 10 to 14 at most. I never told anyone that. I just kept saying, over and over: “Maya will be okay.” Eighteen months of brutal, relentless treatment followed. And then, in September 201
Jan 2


ICU Remains a Real and Terrifying Possibility
It is full-on here… A brief update on Maya. Maya developed severe ICANS (neurotoxicity) following her CAR-T cell infusion on 4th November, causing significant brain inflammation and a markedly reduced level of consciousness. She is currently unable to wake up properly — only very fleeting moments of 5 seconds at best — and she has lost the ability to speak and walk. She only responds to pain. She received the highest level of care in ICU with intensive immunosuppressive and n
Nov 17, 2025
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