The Things We Worry About Now Maya’s Journey — October 2026 The last time I wrote on here was 29th August 2026, in a blog called “It Had Never Reached Her Liver Before. At that point, we were trying to process the fact that Maya’s neuroblastoma had now reached her liver. Since then, so much has happened that it is difficult to know where to begin. And honestly, I don’t think any parent should ever have to write an update like this about their child. We had to stop neuro-rehab

On Friday 22nd August, Maya had the whole-body MIBG scan. In medical language, the report was complicated. In simple terms, it told us something devastating: Maya’s neuroblastoma is active again and has progressed. The tumour we already knew about near the lower left side of her chest and ribs has grown significantly and become much more active. But it isn’t just there. The cancer has also shown itself in several of Maya’s bones — including her skull, shoulder, right upper ar

Thursday 11th December brought warmth into an otherwise heavy place. Tiffany from The Kent Review came to visit us, arm full of goodies and kindness. We talked about the little tribe that forms here — mums instinctively finding one another, lifting each other when the weight becomes unbearable. I often come across strong and confident, and maybe that’s because survival demands it. But beneath that surface, I carry the same fear as every other parent here. We’re fighting a thi

Maya Update – 20 November 2025 I’ve added stickers over Maya’s face to soften the photos as I know how hard they can be to see — but I also want to keep everyone updated as clearly as possible. 🫁 Scans & Tests Chest X-ray (18/11): Clear. CT scan (18/11): No swelling, but some new changes they’re watching closely. MRI brain & spine (with contrast 19/11): Again, no swelling, but new changes similar to the CT. EMG/Nerve conduction studies (19/11): Inconclusive because she was d

My right shoulder has been in pain for several years now — it started back in the summer of 2020. As a parent of a child battling cancer, I’ve always put myself last. Tonight, the pain is so severe 😩 that sleep has run away from me. I’m waiting for an MRI scan, hoping the orthopaedic specialist can finally create a care plan for me. But truthfully, this physical pain is nothing compared to the soul pain that childhood cancer brings. 💔 There’s nothing harder than begging for