THE NEWS WE DIDN’T WANT. THE FIGHT WE’RE NOT GIVING UP.
25.8.2026 It’s just… not the news we were begging to hear. 💔
Honestly? I sometimes wonder how many times a parent’s heart can break apart—and still somehow piece itself back together just to keep standing.
Maya had her MIBG scan on 21st August, and it showed MiBG activity right back where that lesion was—behind her ribs, close to her spine—back in August 2025 before she started Car‑T therapy. And what breaks my heart most? There are new spots showing up elsewhere too.
Next up is an urgent CT planning scan—to see if radiotherapy can help hold things steady. If that’s not an option? Chemotherapy might be the only path left.
We’re running out of choices. And yeah… every single one of us is terrified.
But I’m clinging tight to one thing that matters most: Maya is not being sent to a hospice.
We’re still in this. Still figuring things out. Still hoping with everything we’ve got. Still chasing every memory we can make. ❤️🩹
And if you know me at all—you know I’m going to stay this stubbornly hopeful mum for as long as I breathe. I’m going to squeeze every last drop of joy out of every single day we get.
Music filling the room. Belly laughs. Little adventures. Family close by. Our people. The goofy, messy moments. The big, quiet ones too—the kind that stick in your bones forever.
Because cancer doesn’t get the final say on how we live our lives. 💪
Fighting this isn’t just about what the body goes through—it’s about how you choose to show up, even when it hurts.
And Maya? Maya is truly living. 💗
So if you’ve walked alongside us—laughed at her spark, cried with us when it’s hard, kept her in your thoughts or prayers, or ever wondered “what can I actually do?”—please help us build the beautiful moments she deserves.
Every pound given, every share, every little bit of kindness wraps around us and carves out bright spots of joy in a fight no child should ever face.
We can’t see exactly what lies ahead on this road.
But one thing’s sure: we’re not walking it alone.
As long as we have her—we are going to live fully and fiercely. 🎗️
Thank you for staying right here with us—for carrying this journey too.
To those who have asked
PayPal to
Reference: Maya’s Journey
Or
Bank transfer to Santander
D C Nash
Sort code 09-01-36
Account 49579984
Reference: Maya’s Journey
I was told Santander sometimes decline transfer so:
Bank transfer to Lloyds Bank:
Mrs Dellanie Nash
Sort code 30-93-34
Account 40263960
Reference: Maya’s Journey
Thank you. Thank you. Thank you.
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