Tuesday 25th November has been another REALLY heavy day for Maya. Her post-ICU instability is showing again, and it honestly feels like we’re walking on eggshells with every breath she takes. Her desaturations today proved just how fragile she still is. During the weekdays, Maya will have had visits from the Research Oncology Team, the Ward Doctor Team, CSP (Clinical Site Practitioner), ICU Team, Physio/OT, Play Therapists, Pet Therapy, Music Therapy, Hospital School, and the

Last night, 15th October 2025, was one of those truly magical nights for Maya — and honestly, it was so hard to get her to leave! She knows she’s going to miss the next event, which really broke her little heart 🥺. With her CAR T-cell therapy coming up at Great Ormond Street Hospital (28th October–18th November), the next few weeks are going to be intense. The treatment is incredibly demanding, and she’ll be closely monitored in ITU. But last night, for a few precious hours,