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On Sunday, 10th November, Terry swapped with me so that I could attend my own MRI for a right shoulder rotator cuff injury and get a few nights of proper rest at home. I desperately needed the break after a week of sleepless nights beside Maya’s bed. But as fate would have it, whilst Terry was looking after her, the first signs of neurotoxicity appeared — hallucinations, confusion, and Maya “talking” to her best friends Charlie and Loxley, and her beloved pets Honey, Timmy, a

In the early hours of 11th November, Maya was transferred to the ICU team — they can monitor her more closely and act quickly if she deteriorates. Right now, she’s mostly “absent”… drifting in and out, talking softly to her best friends Charlie and Loxley, and to her pets Honey, Timmy, and Mochi. Thank you for all your messages. Apologies if not able to reply immediately. Thank you for donating towards train fares and hospital foods. If love and prayers could heal….

https://share.icloud.com/photos/056JOasGIGlmttZmzEJqFMl8Q 🩷 Maya Update – Monday, 10th November 💜 After one Sunday night of sleeping at home following my MRI yesterday (Sunday 9th Nov), I’m now back at Great Ormond Street Hospital (GOSH). Maya is very poorly, so I’m staying overnight with her again. My husband Terry isn’t coping well. He’s emotionally exhausted after a long, difficult Sunday night on his own with Maya. He’s currently staying overnight nearby at the Family A

Today (Sunday 9th November), Maya needed a platelet transfusion as her levels dropped to 24 (normal range: 150–450×10⁹/L). On Thursday 7th November (last week) Maya has had red blood transfusion! So grateful to the amazing blood and platelet donors who give the ultimate gift — the gift of life. 🩸 Your kindness keeps our brave girl going… you really are real-life superheroes. ❤️ PayPal details: dellanie_nash@yahoo.co.uk Santander Bank Mrs D C Nash Sort code 09-01-36 Account n

Suspected: Rotator cuff syndrome right shoulder Twenty to twenty-five minutes inside that MRI machine felt like an eternity! The noise, the stillness, the claustrophobic tunnel — I completely understand now why people ask for calming tablets beforehand. And to think… I don’t even suffer from claustrophobia! The friendly MRI team asked, “Have you had one before?” “Yes,” I said — but what I really meant was, I’ve been to many, just never inside one. I’ve spent years sitting bes

The last four days have felt like a never-ending tug of war inside Maya’s little body. We’ve been caught in what I can only describe as a vicious cycle — one step forward, two steps back. As a side effect of Car T Cell Therapy, Maya’s blood pressure has been stubbornly low, and her potassium and magnesium levels have been dipping too. The doctors have been doing everything they can to stabilise her — carefully giving her IV fluids to plump up her blood vessels and help raise

It’s hard to describe what the last few days have been like. I’m here on my own in Lion Ward, cubicle 5, watching my brave girl Maya fight through something that feels like a war raging inside her tiny body. On Tuesday 4th November, Maya received her CAR-T cell therapy — those precious cells we’ve been hoping and waiting for. It only took six minutes for the infusion to go in, but what’s happened since has been nothing short of a battle. Since Tuesday night, Maya has been fig

For the past one week (28th October to 3rd November), Maya’s been hooked up to an IV machine — receiving Fludarabine and Cyclophosphamide chemotherapy alongside 24-hours IV fluids and IV antisickness. Every drop going in and out of her little body is monitored, so every time she needs a pee or poo, she has to catch it in a pot. [Fluid balance: input vs output]. Saturday 1st November, nurse was way too busy in the morning which meant she was two hours behind in giving Maya her

🌼 Awareness & Gratitude 🌼 When I swapped with Terry on Friday night (31st October), I noticed Maya’s PICC line site looking red, sore and Maya was shivering (rigors). It had only been inserted a few days earlier (28th October) under general anaesthetic, so some discomfort was expected — but as a parent, you just know when something doesn’t look right. I raised my concern with the nurse looking after Maya, and I’m so grateful they took it seriously straight away. They checke

🌈 Appreciation Post 🌈 To all the amazing people who help make long hospital days a little brighter — thank you from the bottom of our hearts. ❤️ Although Maya continues her Zoom sessions with her wonderful teacher, Sue, she’s also been surrounded by so many caring souls who lift her spirits and keep her smiling through the hardest days — the incredible team at Spread A Smile Charity, the therapy dogs who bring comfort and calm, the ever-patient play therapist, and the kind

Three weeks to be confined in hospital — and still, this little warrior keeps shining through it all. 🩺 Friday 31st October: IV fluids all day. Cyclophosphamide (1 hour) + Fludarabine (30 mins). She missed celebrating her sister Lola’s Halloweeny birthday again, just like last year — but still found a way to smile. 🩺 Saturday 1st November: IV fluids all day. Cyclophosphamide (1 hour) + Fludarabine (30 mins). 🩺 Sunday 2nd November: Bloods, fluids finishing after 24 hours, a

They say time heals, but how do you heal from watching your child go through this again and again and again??? Another bone marrow biopsy. Another picc line insertion. Another anaesthetic. 28.10.2025 Another day wishing I could take her place. 💔 #HeartbrokenFather #ChildhoodCancerAwareness #Neuroblastoma #GOSH #WhyHer #DadLove #UnfairLife #CourageThroughPain #ForMaya P.s. There are supporters who don’t use Paypal. So for anyone who would like to donate directly: Santander b

Kind-hearted people have taken the time to suggest that Maya may be eligible for hospital transport — and we truly appreciate it. Patient Transport is a service provided by G4S on behalf of the NHS Integrated Care Board for Kent and Medway. It is designed to support you if your medical or physical condition means you cannot use public transport, get a lift, or drive yourself to, and from, your NHS appointment. people who are unlikely to qualify for this service are usually th

Caring for your child becomes everything. You are her teacher, her friend, her playmate, her taxi driver — you are her whole world. You advocate for her every day — explaining to doctors what hurts, when it started, and how often it happens. You learn about medicines you’d never heard of until they’re being pumped into your baby. You catch puke. You communicate endlessly. You might still be parenting another child, trying to juggle work, life and friendships, or pleading with

If you have or have had cancer, you are protected by law from unfair treatment at work for the rest of your life. This means that it is unlawful for an employer to treat you less favourably (discriminate against you) because of cancer. But if it were your child that has cancer, there is no UK employment law that mandates to protect your income or wages if you were to take some time off work to look after your seriously sick child. I am very fortunate to have employers who hav

Is the universe testing me and my husband Terry? Some days, I think the answer is a resounding yes. Today (Thursday 15th October 2025) was one of those “only in the life of a parent of a child with cancer” kind of days. GOSH—Great Ormond Street Hospital—is filled with the kindest, most hardworking nurses and staff you could imagine. But, bless them, sometimes it feels like the whole logistical side of children’s cancer treatment is run by a last-minute dot-com startup. 🤯 Cas

Last night, 15th October 2025, was one of those truly magical nights for Maya — and honestly, it was so hard to get her to leave! She knows she’s going to miss the next event, which really broke her little heart 🥺. With her CAR T-cell therapy coming up at Great Ormond Street Hospital (28th October–18th November), the next few weeks are going to be intense. The treatment is incredibly demanding, and she’ll be closely monitored in ITU. But last night, for a few precious hours,

July 2018: Since giving birth to my two daughters (Lola & Maya), I've made it my business to observe my daughters and their father Terry Nash. And recently, I've seen many incredible, beautiful things like our little girl Maya who's got a very strong bond with her Daddy from day one. Maya is a funny little girl and was kind of cute... However, Maya's diagnosis of Neuroblastoma gave her skin several uneven dark patches due to the effects of chemotherapy, most of her hair falls

On Monday, 13th October 2025, Maya had a physiotherapy appointment at The William Harvey Hospital. The initial reason for her referral was knee pain—something that, thankfully, has now resolved. So naturally, the physiotherapist said she was ready to discharge Maya. But as any parent of a child with cancer knows, recovery isn’t that simple. I gently explained that Maya’s challenges go beyond knee pain. Years of chemotherapy have left her with weakness in her limbs and stabili